I slid off the table. I wasn’t entirely sure how, but I felt, yet again, like I’d somehow been argued into a corner. I reached for the chopping board on the drainer.

‘And Lou, I’m sorry. About the money thing.’

‘Yeah. Well.’ I turned, and began rinsing the chopping board under the sink. ‘Don’t think that’s going to get you your tenner back.’

Two days later Will ended up in hospital with an infection. A precautionary measure, they called it, although it was obvious to everyone that he was in a lot of pain. Some quadriplegics had no sensation but, while he was impervious to temperature, below his chest Will could feel both pain and touch. I went in to see him twice, bringing him music and nice things to eat, and offering to keep him company, but peculiarly I felt in the way, and realized quite quickly that Will didn’t actually want the extra attention in there. He told me to go home and enjoy some time to myself.

A year previously, I would have wasted those free days; I would have trawled the shops, maybe gone over to meet Patrick for lunch. I would probably have watched some daytime television, and maybe made a vague attempt to sort out my clothes. I might have slept a lot.

Now, however, I felt oddly restless and dislocated. I missed having a reason to get up early, a purpose to my day.

It took me half a morning to work out that this time could be useful. I went to the library and began to research. I looked up every website about quadriplegics that I could find, and worked out things we could do when Will was better. I wrote lists, adding to each entry the equipment or things I might need to consider for each event.

I discovered chat rooms for those with spinal injuries, and found there were thousands of men and women out there just like Will – leading hidden lives in London, Sydney, Vancouver, or just down the road – aided by friends or family, or sometimes, heartbreakingly alone.

I wasn’t the only carer interested in these sites. There were girlfriends, asking how they could help their partners gain the confidence to go out again, husbands seeking advice on the latest medical equipment. There were advertisements for wheelchairs that would go on sand or off-road, clever hoists or inflatable bathing aids.

There were codes to their discussions. I worked out that SCI was a spinal cord injury, AB the able-bodied, a UTI an infection. I saw that a C4/5 spinal injury was far more severe than a C11/12, most of whom still seemed to have use of their arms or torso. There were stories of love and loss, of partners struggling to cope with disabled spouses as well as young children. There were wives who felt guilty that they had prayed their husbands would stop beating them – and then found they never would again. There were husbands who wanted to leave disabled wives but were afraid of the reaction of their community. There was exhaustion and despair, and a lot of black humour – jokes about exploding catheter bags, other people’s well-meaning idiocy, or drunken misadventures. Falling out of chairs seemed to be a common theme. And there were threads about suicide – those who wanted to, those who encouraged them to give themselves more time, to learn to look at their lives in a different way. I read each thread, and felt like I was getting a secret insight into the workings of Will’s brain.

At lunchtime I left the library and went for a brief walk around town to clear my head. I treated myself to a prawn sandwich and sat on the wall watching the swans in the lake below the castle. It was warm enough for me to take off my jacket, and I let my face tilt towards the sun. There was something curiously restful about watching the rest of the world getting on with its business. After spending all morning stuck in the world of the confined, just being able to walk out and eat my lunch in the sun felt like a freedom.

When I had finished, I walked back to the library, reclaimed my computer terminal. And I took a breath and typed a message.

Hi – I am the friend/carer of a 35 yo C5/6 quadriplegic. He was very successful and dynamic in his former life and is having trouble adjusting to his new one. In fact, I know that he does not want to live, and I am trying to think of ways of changing his mind. Please could anyone tell me how I could do this? Any ideas for things he might enjoy, or ways I could get him to think differently? All advice gratefully received.

I called myself Busy Bee. Then I sat back in my chair, chewed at my thumbnail for a bit, and finally pressed ‘Send’.

When I sat down at the terminal the next morning, I had fourteen answers. I logged into the chat room, and blinked as I saw the list of names, the responses which had come from people worldwide, throughout the day and night. The first one said:

Dear Busy Bee,

Welcome to our board. I’m sure your friend will gain a lot of comfort from having someone looking out for him.

I’m not so sure about that, I thought.

Most of us on here have hit a definite hump at some point in our lives. It may be that your friend has hit his. Don’t let him push you away. Stay positive. And remind him that it is not his place to decide both when we enter and depart this world, but that of the Lord. He decided to change your friend’s life, in His own wisdom and there may be a lesson in it that He –

I scanned down to the next one.

Dear Bee,

There is no way around it, being a quad can suck. If your guy was a bit of a player too, then he is going to find it extra hard. These are the things that helped me. A lot of company, even when I didn’t feel like it. Good food. Good docs. Good meds, depression meds when necessary. You didn’t say where you were based, but if you can get him talking to others in the SCI community it may help. I was pretty reluctant at first (I think some part of me didn’t want to admit I was actually a quad) but it does help to know you’re not alone out there.

Oh, and DON’T let him watch any films like

The Diving Bell and the Butterfly

. Major downer!

Let us know how you get on.

All best,

Ritchie

I looked up The Diving Bell and the Butterfly. ‘The story of a man who suffers a paralysing stroke, and his attempts to communicate with the outside world,’ it said. I wrote the title down on my pad, uncertain whether I was doing so to make sure Will avoided it, or so I remembered to watch it.

The next two answers were from a Seventh-day Adventist, and a man whose suggested ways in which I could cheer Will up were certainly not covered by my working contract. I flushed and hurriedly scrolled down, afraid that someone might glance at the screen from behind me. And then I hesitated on the next reply.

Hi Busy Bee,

Why do you think your friend/charge/whatever needs his mind changing? If I could work out a way of dying with dignity, and if I didn’t know it would devastate my family, I would take it. I have been stuck in this chair eight years now, and my life is a constant round of humiliations and frustrations. Can you really put yourself in his shoes? Do you know how it feels to not even be able to empty your bowels without help? To know that forever after you are going to be stuck in your bed/unable to eat, dress, communicate with the outside world without someone to help you? To never have sex again? To face the prospect of sores, and ill health and even ventilators? You sound like a nice person, and I’m sure you mean well. But it may not be you looking after him next week. It may be someone who depresses him, or even doesn’t like him very much. That, like everything else, is out of his control. We SCIs know that very little is under our control – who feeds us, dresses us, washes us, dictates our medication. Living with that knowledge is very hard.

So I think you are asking the wrong question. Who are the AB to decide what our lives should be? If this is the wrong life for your friend, shouldn’t the question be: How do I help him to end it?

Best wishes,

Gforce, Missouri, US

I stared at the message, my fingers briefly stilled on the keyboard. Then I scrolled down. The next few were from other quadriplegics, criticizing Gforce for his bleak words, protesting that they had found a way forward, that theirs was a life worth living. There was a brief argument going on that seemed to have little to do with Will at all.

And then the thread dragged itself back to my request. There were suggestions of antidepressants, massage, miracle recoveries, stories of how members’ own lives had been given new value. There were a few practical suggestions: wine tasting, music, art, specially adapted keyboards.

‘A partner,’ said Grace31 from Birmingham. ‘If he has love, he will feel he can go on. Without it, I would have sunk many times over.’

That phrase echoed in my head long after I had left the library.

Will came out of hospital on Thursday. I picked him up in the adapted car, and brought him home. He was pale and exhausted, and stared out of the window listlessly for the whole journey.

‘No sleep in these places,’ he explained, when I asked him if he was okay. ‘There’s always someone moaning in the next bed.’

I told him he would have the weekend to recover, but after that I had a series of outings planned. I told him I was taking his advice and trying new things, and he would have to come with me. It was a subtle change in emphasis, but I knew that was the only way I could get him to accompany me.

In fact, I had devised a detailed schedule for the next couple of weeks. Each event was carefully marked on my calendar in black, with red pen outlining the precautions I should take, and green for the accessories I would need. Every time I looked at the back of my door I felt a little glimmer of excitement, both that I had been so organized, but also that one of these events might actually be the thing that changed Will’s view of the world.

As my Dad always says, my sister is the brains of our family.

The art gallery trip lasted a shade under twenty minutes. And that included driving round the block three times in search of a suitable parking space. We got there, and almost before I had closed the door behind him he said all the work was terrible. I asked him why and he said if I couldn’t see it he couldn’t explain it. The cinema had to be abandoned after the staff told us, apologetically, that their lift was out of order. Others, such as the failed attempt to go swimming, required more time and organization – the ringing of the swimming pool beforehand, the booking of Nathan for overtime, and then, when we got there, the flask of hot chocolate drunk in silence in the leisure centre car park when Will resolutely refused to go in.

The following Wednesday evening, we went to hear a singer he had once seen live in New York. That was a good trip. When he listened to music he wore an expression of intense concentration. Most of the time, it was as if Will were not wholly present, as if there were some part of him struggling with pain, or memories, or dark thoughts. But with music it was different.

And then the following day I took him to a wine tasting, part of a promotional event held by a vineyard in a specialist wine shop. I had to promise Nathan I wouldn’t get him drunk. I held up each glass for Will to sniff, and he knew what it was even before he’d tasted it. I tried quite hard not to snort when Will spat it into the beaker (it did look really funny), and he looked at me from under his brows and said I was a complete child. The shop owner went from being weirdly disconcerted by having a man in a wheelchair in his shop to quite impressed. As the afternoon went on, he sat down and started opening other bottles, discussing region and grape with Will, while I wandered up and down looking at the labels, becoming, frankly, a little bored.

‘Come on, Clark. Get an education,’ he said, nodding at me to sit down beside him.

‘I can’t. My mum told me it was rude to spit.’

The two men looked at each other as if I were the mad one. And yet he didn’t spit every time. I watched him. And he was suspiciously talkative for the rest of the afternoon – swift to laugh, and even more combative than usual.

And then, on the way home, we were driving through a town we didn’t normally go to and, as we sat, motionless, in traffic, I glanced over and saw the Tattoo and Piercing Parlour.

‘I always quite fancied a tattoo,’ I said.

I should have known afterwards that you couldn’t just say stuff like that in Will’s presence. He didn’t do small talk, or shooting the breeze. He immediately wanted to know why I hadn’t had one.

‘Oh … I don’t know. The thought of what everyone would say, I guess.’

‘Why? What would they say?’

‘My dad hates them.’

‘How old are you again?’

‘Patrick hates them too.’

‘And he never does anything that you might not like.’

‘I might get claustrophobic. I might change my mind once it was done.’

‘Then you get it removed by laser, surely?’

I looked at him in my rear-view mirror. His eyes were merry.

‘Come on, then,’ he said. ‘What would you have?’

I realized I was smiling. ‘I don’t know. Not a snake. Or anyone’s name.’

‘I wasn’t expecting a heart with a banner saying “mother”.’

‘You promise not to laugh?’

‘You know I can’t do that. Oh God, you’re not going to have some Indian Sanskrit proverb or something, are you? What doesn’t kill me makes me stronger.’

‘No. I’d have a bee. A little black and yellow bee. I love them.’

He nodded, as if that were a perfectly reasonable thing to want. ‘And where would you have it? Or daren’t I ask?’

I shrugged. ‘Dunno. My shoulder? Lower hip?’

‘Pull over,’ he said.

‘Why, are you okay?’

‘Just pull over. There’s a space there. Look, on your left.’

I pulled the car into the kerb and glanced back at him. ‘Go on, then,’ he said. ‘We’ve got nothing else on today.’

‘Go on where?’

‘To the tattoo parlour.’

I started to laugh. ‘Yeah. Right.’

‘Why not?’

‘You have been swallowing instead of spitting.’

‘You haven’t answered my question.’

I turned in my seat. He was serious.

‘I can’t just go and get a tattoo. Just like that.’

‘Why not?’

‘Because … ’

‘Because your boyfriend says no. Because you still have to be a good girl, even at twenty-seven. Because it’s too scary. C’mon, Clark. Live a little. What’s stopping you?’

I stared down the road at the tattoo parlour frontage. The slightly grimy window bore a large neon heart, and some framed photographs of Angelina Jolie and Mickey Rourke.

Will’s voice broke into my calculations. ‘Okay. I will, if you will.’

I turned back to him. ‘You’d get a tattoo?’

‘If it persuaded you, just once, to climb out of your little box.’

I switched off the engine. We sat, listening to it tick its way down, the dull murmur of the cars queuing along the road beside us.

‘It’s quite permanent.’

‘No “quite” about it.’

‘Patrick will hate it.’

‘So you keep saying.’

‘And we’ll probably get hepatitis from dirty needles. And die slow, horrible, painful deaths.’ I turned to Will. ‘They probably wouldn’t be able to do it now. Not actually right now.’

‘Probably not. But shall we just go and check?’

Two hours later we exited the tattoo parlour, me eighty pounds lighter and bearing a surgical patch over my hip where the ink was still drying. Its relatively small size, the tattoo artist said, meant that I could have it lined and coloured in one visit, so there I was. Finished. Tattooed. Or, as Patrick would no doubt say, scarred for life. Under that white dressing sat a fat little bumblebee, culled from the laminated ring binder of images that the tattoo artist had handed us when we walked in. I felt almost hysterical with excitement. I kept reaching around to peek at it until Will told me to stop, or I was going to dislocate something.

Will had been relaxed and happy in there, oddly enough. They had not given him a second look. They had done a few quads, they said, which explained the ease with which they had handled him. They were surprised when Will said he could feel the needle. Six weeks earlier they had finished inking a paraplegic who had had trompe l’oeil bionics inked the whole way down one side of his leg.

The tattooist with the bolt through his ear had taken Will into the next room and, with my tattooist’s help, laid him down on a special table so that all I could see through the open door were his lower legs. I could hear the two men murmuring and laughing over the buzz of the tattooing needle, the smell of antiseptic sharp in my nostrils.

When the needle first bit into my skin, I chewed my lip, determined not to let Will hear me squeal. I kept my mind on what he was doing next door, trying to eavesdrop on his conversation, wondering what it was he was having done. When he finally emerged, after my own had been finished, he refused to let me see. I suspected it might be something to do with Alicia.

‘You’re a bad bloody influence on me, Will Traynor,’ I said, opening the car door and lowering the ramp. I couldn’t stop grinning.

‘Show me.’